My Xtreme Hike Story

Cystic fibrosis is a rare, life-shortening, genetic disease found in about 30,000 people in the U.S., which causes persistent lung infections and limits the ability to breath over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers – all struggling each day just to breathe and live normal, healthy lives.

Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are now living into their forties and beyond – achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own. Or as in the case of Isabelle, a semester abroad in Spain during college and she has since graduated and is currently paving her way in corporate america.  She even has started running which would have been unimaginable years ago.

Her health and the life saving pharmaceuticals she has access to are all due to the generosity of private donors (CF is termed an orphan disease as it gets very little public funding.)

We are looking forward to hiking as a team again on Saturday, September 21st

Hiking thirty miles is nothing compared to worrying about one's health 24/7.  

Thank you for helping find a cure for CF and making a difference.

Give what you can - EVERY dollar helps.