My Xtreme Hike Story
Cystic fibrosis is a rare, life-shortening, genetic disease found in about 30,000 people in the U.S., which causes persistent lung infections and limits the ability to breathe over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers – all struggling each day just to breathe and live normal, healthy lives.
Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are now living into their forties – achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own.
While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. By participating in Xtreme Hike, I am helping add tomorrows to the lives of all people living with CF today.
Our son Lars Conant was born on January 3, 2019 in Glenwood Springs Colorado at Valley View Hospital, two days later he was flown to Presbyterian saint Luke's hospital in Denver for an intestinal obstruction that turned out to be a merconium illius cyst located in his small intestine. After emergency surgery at PSL to remove the obstruction, Dr. Hansen (NICU Doctor) immediately recognized the condition (common in infants with CF) and ordered DNA testing for CF. We found out 8 days later while Lars was recovering in the NICU from his first surgery that he did in fact have CF. The DF508 and 3509insT mutations were discovered by the DNA tests. Lars has undergone a total of three intestine surgeries in his short 11 months of life, yet he has proven his resilience and lust for life despite the shit CF has thrown his way!! He's strong on the growth charts and he's kicking ass every day with the help of his mom, sister and dad! Mom (Esther) really works hard to keep Lars in good health and she goes above and beyond to make sure Lars is thriving each and every day! CF is tough (to say the least) for everyone affected. We are so grateful for Lars and we know that Everyone with CF is struggling and we wish the best for everyone with CF. We thank our friend Alyssa for finding out about this event to support CFF! Please support our team so the CFF can continue the important mission of squashing CF!!!
Please make a difference and support me by giving to my Xtreme Hike fundraising campaign today. Donate an amount that is meaningful to you, thanks!