My Xtreme Hike Story
27 years ago, my wife Margie and I learned that our oldest daughter had Cystic Fibrosis, which we knew very little about, other than she was suffering from the effects and was unlikely to survive past 30, that she would be coughing constantly and spend many weeks each year in the hospital.
Over the last six months, we have watched Liv experience a miracle. Through decades of work funded by the Cystic Fibrosis Foundation, the new medication Trikafta has led to unprecedented improvement in all aspects of her health. After all these years caring for her, then trying to help her manage her own care, it’s hard to describe how significantly this therapy has changed her life.
Now, she is working out like never before, and we have challenged each other to participate in the Vail Extreme hike. For the first time in more than a decade, she is dramatically improving her fitness. I am inspired by her dedication and hard work, and am committed to finishing at least 10 miles at elevation… hopefully not too far behind her!
Olivia still has the burden of daily treatments, and there are many more affected by CF who are not helped by this medication. Olivia and thousands of other people like her need your help to continue research until a cure is found for all.