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2024 Central New York Xtreme Hike

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Fundraising Progress

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Raised: $1,250.00

Goal: $2,500.00

My Xtreme Hike Story

So much progress has been made for the CF community. Because of all of your past donations YOU have been a part of the reason researchers have helped create a near miraculous therapy called Trikafta! Because of this medicine people (Tess) living with CF have GREATLY increased quality of life... as well as life expectancy. 56 is the median life expectancy of someone born with CF today. 
Before Trikafta.... it was a monumental task for Tess to walk upstairs. Now, 4 years on Trikafta... her improvements from going on longer walks to lifting weights in the gym. For now, the talk of lung transplants is put on the back burner. Instead, Tess celebrated her 23rd birthday, graduated college with a degree in public health!! 23 years ago, this outlook looked grim – now I look at her and I see a chance for a young lady, that can start her career and a life like she has always dreamed of!!!
Tess, and others like her, are not out of the woods. There is still permanent lung damage to deal with, liver problems from this medication and still serious bacterial infections for Tess. Also, 10% of the CF population this drug does not work for. More CF patients continue to need our help! She still does daily treatments and takes medicine daily. We keep pushing the researchers and scientists to do more, and we have PROVED that money buys science, and science saves lives!
This is why I am asking you to please consider contributing again to the hike and next our golf tournament. As I have shared, all the money we have raised throughout the years has supported this very drug (and others) that continuously help Tess and others living with CF suffer less!!! Thank you!

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