My Xtreme Hike Story

Dear Family, Friends, and Colleagues,

This is my favorite little human, Mabel, who also happens to be my niece and goddaughter. She has Cystic Fibrosis, a genetic disease that impacts the lungs, pancreas, and digestive system.

I have signed up for the Cystic Fibrosis Foundation’s Xtreme Hike event again this year, which takes place in the Adirondack high peaks on August 24th, in order to hike FOR her. It felt incredible to support her in this way the last two years and I look forward to doing it again this year! It really is the perfect marriage of my passion for hiking and my eagerness to raise awareness and money for Cystic Fibrosis! I’m so excited to have found an outlet to both hike AND help Mabel!

All of the money raised for the Cystic Fibrosis Foundation will fund research, clinical trials, and other medical assistance that will help give Mabel and others a fighting chance against this disease.

Significant advances have been made in the treatment of common mutations of Cystic 

Fibrosis, such as the drug, Trikafta, which helps 90% of those who have the most common mutations. This is such great news! Mabel’s mutation, however, is a combination of two rare mutations, and this drug does not help her. This means that the fight to find a treatment and/or cure for her is more difficult.

Your donation will help support my effort to raise $2,500 and bring us all closer to the day that “CF” can stand for CURE FOUND! 

Thank you so very much for your support! It means so much to me and my family!

With love, 

Debbie