Our Xtreme Hike Story

This is my fourth year participating in the VA Xtreme Hike. This event is so emotional and inspiring, and I am thrilled to be able to do it again in 2024. I wish I had the words to express how much this event impacted me.  I feel so full of hope and know that Natalie has so much love and support from people she doesn't even know who are fighting for her and everyone with CF.

In May of 2022 Natalie started taking the game-changing drug Trikafta! We are so excited she has access to this drug.  This drug is a modulator. Modulators work by helping to fix defective CFTR protein, which is the closest we’ve currently got to fixing the root of the issues caused by Natalie’s mutations. There are a few other approved modulators, but Trikafta is the only one that Natalie is eligible to take based on her mutations.  This drug was made possible by the contributions from people like you. Words can’t express how grateful our family is for your support of our little girl.

Thank you for joining us in making CF stand for Cure Found!