Virginia Xtreme Hike
My Xtreme Hike Story
Cystic fibrosis is a rare, life-shortening, genetic disease found in about 30,000 people in the U.S., which causes persistent lung infections and limits the ability to breath over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers - all struggling each day just to BREATHER and live normal, healthy lives.
Many of you know that my two nieces, Aly (23) and Maddie (21) and my nephew Killian (19) who have been fighting this disease for THIER ENTIRE LIVES!! I am hiking a marathon on September 18th in order to raise awareness about CF and to raise money to find a cure!
Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are now living into their forties - achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own.
Aly recently graduated from West Virginia Wesleyan with her master’s in physical training. Maddie just graduated Virginia Tech with a degree in Business and Killian has finished his freshman year at Averett where he is also in their pilot training program. They are all doing well on the latest CF break through drug - Trikafta however not all CF patients can take this drug, so we still have more research to do to find a cure!
While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. By participating in Xtreme Hike, I am helping add tomorrows to the lives of all people living with CF today.
Please make a difference and support me by giving to my Xtreme Hike fundraising campaign today. Donate any amount that is meaningful to you but MAKE IT COUNT as it's going to be a LONG hike and I need all the $$$$$ motivation I can get!