My Xtreme Hike Story

A Dad's story of hiking 30 miles in a day for his Son

What is the Cystic Fibrosis Foundation Xtreme Hike?

The Xtreme Hike is an event to raise awareness and financial support for the Cystic Fibrosis Foundation (501C3).  Participants will attempt to hike 30 miles in one day along the Appalachian Trail in Western North Carolina.

My Cystic Fibrosis Story - Max

Max is my 7 year old son and my real life hero.  He was diagnosed with Cystic Fibrosis shortly after birth and has been quietly battling it ever since.  I could write a book describing how awesome Max is; however in just few brief words he's an energetic, fun loving, and clever kid.  He loves the outdoors, figuring out how things work, and climbing anything under 30 feet high!  Building Lego's is another hobby of his and he was able to visit Legoland in Florida this summer, thanks to the Make A Wish Foundation.

My Hike Story (Dad)​

As I get older, the training and difficulty of hiking 30 miles in one day gets harder but I never question doing it again the following year.  It is worth every ounce of my energy and more.  This year I have decided to join the North Carolina Chapter on the Appalachian Trail where the concept of the Xtreme Hike originated.  I am excited to meet new people and learn about their stories and connections to Cystic Fibrosis.  I hope you can help support this all to important cause and know that you are helping children, parents, grandparents, friends, and neighbors.

Thank you to everyone for taking the time to read this far and extra thank you to the friends and family that show up for us year in and year out,

Shaun - CF Dad

What is Cystic Fibrosis and why?

There is currently no cure for cystic fibrosis. By participating in Xtreme Hike, I am helping to end this disease for thousands of people impacted by CF.

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues. 

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.