My Xtreme Hike Story
My Hike Story
My son, Jason (almost 14), was diagnosed with Cystic Fibrosis when he was 17 days old. That was a life changing diagnosis for our family. Jason battles CF daily with treatments and swallows over 30 enzymes, medications, and vitamins daily to stay as healthy as possible. He does all that he can to stay healthy without complaint unless it involves a blood draw or throat swab, but even those he takes on like a champ more and more. We have witnessed an awesome improvement in his overall health after he was able to begin taking a medication called Trikafta in the last few years! This medication and others provide a great benefit for those with CF and the hope is to continue to develop these types of medications and make them even better.
There is currently no cure for cystic fibrosis. By participating in Xtreme Hike, we are hoping and helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance the mission for a cure for all. Please consider joining me and helping make CF stand for Cure Found.
Comments