My Xtreme Hike Story
My name is Shelby! I love reading, writing, playing with my dogs (Macie and Bowie), and making a mess in the kitchen. I'm a terrible dancer, but I love classic and punk rock
I was diagnosed with cystic fibrosis at the age of 2 and a half. Since that diagnosis, I have never let CF define me. I have made it my mission through public speaking about my CF journey to show people that you should not live your life backed into a corner.
My fight against CF took a turn in 2015 when I was placed into a medically induced coma and on life support at Long Beach Memorial Hospital. I woke up weeks later at the Ronald Reagan UCLA Medical Center unable to move or speak. Before I really knew what was going on, I was being told that I needed a double lung transplant. On October 27, 2015 I recieved the ultimate gift from God and my organ donor, a new set of lungs and a second chance at life.
My first lung transplant allowed me to go to college, continue to work for the nonprofit organizations I was passionate about, and learn how to make so many good recipes (yes grandma your carrot cake). In 2019, I learned that I had organ rejection. My lung function of 115% quickly dropped to 80 then 50 then 20 then 10. Because my body likes to add its own*sparkle* to life, my kidneys decided to bite the dust too. I found myself again on the list for not only a lung transplant, but a kideny transplant as well. In April of 2020, I received both my second lung and a kidney transplant. (Become an organ donor, it takes guts!)
I wake up everyday thankful for the water I drink, the food I eat, and every step I take. This year I am making it my goal to participate in Xtreme Hike and raise money and awareness for the Cystic Fibrosis Foundation and organ donation! Help me reach my goal in the fight to make CF take a hike! (get it?)
I don't know where I'm going from here, but I promise it won't be boring. -David Bowie