Sue's Page

Orange County Xtreme Hike

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Fundraising Progress

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Raised: $1,290.00

Goal: $5,000.00

My Xtreme Hike Story

  • Birthday celebration in 2017
  • Shelby with Tre Cool 2019

There are approximately 30,000 Americans living with cystic fibrosis ... and one of them is my daughter, Shelby.  Shelby was diagnosed with CF at the age of two and the disease wrecked havoc on her lungs for 17 years.  In the Summer of 2015, those lungs gave out and CF came incredibly close to claiming her life.  Once she made it through that transplant, we thought the battle was over; that she'd move forward without being threatened by her defective lungs.  And she did move forward --attend college, hang out with friends, travel -- for awhile.  But in the Fall of 2019, she experienced a double whammy.  Her weakened kidneys stopped functioning and her body began rejecting her transplanted lungs. 

She experienced an intense medical journey and months of hospitalization in 2020.  The hospitalization and treatments were severely impacted by COVID-19 protocols including being hospitalized without visitors.  After being intubated and on a respirator (again!), she was successfully transplanted with a new kidney and double lungs on April 17, 2020.  She is continuing to recover now and hopes to return to Chapman University this fall to finish her degree.  

Needless to say, Shelby's second near-death journey has redoubled our focus to find a cure for Shelby and all of the other children and young adults that suffer from this disease.  On Saturday, September 26, I will be participating in the Mount Baldy Cystic Fibrosis Foundation’s Xtreme Hike to help raise funds and awareness for CF. It will be challenge as we will be hiking at high altitude levels ... but it will remind us of the people with CF who are challenged to breathe every day of their life.  

Would you be able to make a tax deductible donation to support me and help find a cure for CF?  Every dollar we raise gets us closer to reaching our goal of turning the letters 'CF' into the words 'Cure Found.'

Thank you so much for your prayers and support.

Fight On!


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