My Xtreme Hike Story

My Hike Story

Both of my children, Ashton (23) and Lola (18) have this dreaded genetic disease. I remember when Ashton was born 11 weeks early weighing only 3 lbs and needed emergency intestinal surgery to repair a perforated intestine.  The pain he suffered must have been unimaginable.  2 months in the NICU, intubation, several IV lines, not being able to eat for a month, jaundice and forgetting to breathe a few times.  It was terror.  Despite all the advances, babies are still born with this awful complication.  If we can find a cure, my children and the other approximately 110,000 other people with CF will be saved and future trauma at births like Ashton's can be avoided. 

Every dollar is like another breath for my children. More than $5 Billion will need to be raised until 2035 to find the ultimate cure.  

There is NO cure now. 

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues. 

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.