Have Faith

Hello Friends and Family! Our letter comes from our third child this year: 

"Greetings, Friends:

I am Adam, Faith’s younger brother, third Ettlich sibling. 

All sixteen of my years, I’ve lived alongside Faith in her fight against CF. From my early memories of her, Faith has had to do a multitude of treatments to combat the historically terminal disease. What I think a lot of people don’t know today, however, is how far these treatments have really come in fighting the battle.

Until about age fifteen, Faith would have multiple different pills to take throughout each day, a vest machine treatment to break up mucus in her lungs twice a day, and frequent visits to her doctor. In 2019 everything changed for her. With the introduction of a groundbreaking drug called Symdeko, I watched Faith, who had always needed so many treatments, suddenly begin to free herself of some of them. Her cough lessened; she began to feel healthier. Then in 2021, she began the next newer/better similar drug called Trikafta, which really changed her life. After she had been taking Trikfafta for a couple years, I started noticing that I didn’t see Faith on her vest much anymore, her visits to her pulmonologist drastically diminished, and she is definitely all around more healthy and energetic, able to travel the world without the constant worry of her disease. Right now she’s studying abroad in Croatia!

The Cystic Fibrosis Foundation (CFF) is instrumental in the development of these near life-saving drugs, raising much of the money needed to research and produce them. On Saturday, April 27, 2024, our family (minus Faith and Noah) will participate in the annual CFF Great Strides walk, to raise money for the Cystic Fibrosis Foundation. Our team is called Have Faith.

Will you please help us meet our team fundraising goal of $10,000 by donating at our website (click here) so that Faith and thousands of other people live happier, healthier lives? Some people with a different CF mutation still don’t have “their Trikafta.” They are still experiencing the symptoms Faith used to, so we fundraise for all with CF.

Your generous gift will be used efficiently and effectively. The CF Foundation takes great pride in being careful stewards of every dollar raised in support of its mission. As a bonus, your gift is tax-deductible. :)

Thank you for supporting the mission of the CF Foundation and helping my sister in her fight against this disease. 

God Bless,

Adam