March for Mila

Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal! 

Our Great Strides Story

My husband and I will never forget the day that we received a phone call from a genetic counselor telling us that our soon to be born baby girl had tested positive for Cystic Fibrosis. We were immediately hit with a tidal wave of grief, uncertainty and fear. We were terrified thinking about how this inherited disease would affect our unborn daughter. We immediately began researching Cystic Fibrosis, and what this meant for our future. We were met with terms such as "life shortening" and "life threatening". I will never be able to fully explain how overwhelming it is to have to face your child's mortality before they are even born. We were also met with stories of hope, describing the advances in medication, such as Trikafta, and treatments,  as well as the support the CF Foundation provides for patients and their families. From that day on, my husband and I agreed to make it our life's mission to find a cure for our daughter, and to ensure she lives her life to the fullest extent.

 From the moment she was born, she has shown us that she will not let CF define her or slow her down. She endures countless medications, and hours of treatments with nothing but a smile on her face every day. One aspect of CF that was a surprise to us, was how the disease impacts every organ in the body. I, like many others, originally believed that CF primarily involved the lungs, however that has not been Mila's experience thus far. The most debilitating aspect of CF for Mila, up to this point, has been its effect on her entire gastro-intestinal tract. This has resulted in Mila requiring a gastronomy tube as well as hospitalizations and painful bouts of intestinal obstructions. We are hopeful that continued research will lead to medications that address ALL aspects of the disease for the wide variety of experiences of those living with CF. Research and advancements in medications would not be possible without supporters such as yourselves. With your continued support, we will find a cure! For Mila and for all other CF warriors!

Join our team to help make a difference in the lives of all people living with CF. To become a member of our team, click the "Join This  Team" button. From there, you can donate and start fundraising. If you are looking to support our team, without becoming a member, please consider donating on Mila's behalf by clicking the "Donate to a Team Member" then selecting "Mila Fuoti". Thank you all for your continued support in this fight!