Marc is 11 years old and Thank God, he's doing great!
Marc is healthy, active and talented! He's staring in his 5th musical this June. He also takes voice and piano lessons-his piano teacher says he has perfect pitch and a natural gift for music! He loves to write scripts and then to direct family members (as his unpaid actors), while he records his work on his iPad! He's a tough director, so you better show up ready to work!
Marc's an avid swimmer and has been taking swimming lesson for over 5 years, working hard to improve his techniques. He also likes to shoot hoops, play baseball and table tennis, roller skate and ice skate. He loves bowling, and, of course, playing video games on his Nintendo.
He's in 5th grade now, working hard on his academics! We're so proud of him and we know he can do anything he sets out to do!
Most people know Cystic Fibrosis as a "lung disease" because the thick mucus always adversely affects the lungs. But it also affects the stomach, gastrointestinal tract, sinuses, pancreas and liver. The constant exposure to medication can also damage the kidneys. It can also cause CF related diabetes and male infertility- not to mention mental health issues like depression and anxiety. CF is a progressive, chronic illness with no cure!
Marc looks great, he's healthy, but it takes a lot of daily maintenance (up to 2 hours daily), medication, quarterly doctors appointments and patience to go about his life as a typical 11 year old boy!
Marc's been on Trikafta for 3 years. Trikafta helps in correcting the mutated genes for CF patients with two copies of the F508del mutation. It helps to improve lung function and reduce respiratory exacerbations, but it is NOT a cure! It doesn't eliminate his daily routines of treatments and medications. Despite Trikafta's promise, the average life expectancy of a CF patient is mid 50s.
We still need a cure for Marc and we'll walk every year until they find one!
There are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to BREATHE.
We walk for them. Will you help us?
All we need you to do to is either make a donation (any amount is appreciated) or become a member of our team by clicking on the "Join our Team" button. From there you can make a donation and start your fundraising.
Thank you!
Marc, Nicole & Brian
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.