Rally for Reagan

Reagan was diagnosed with Cystic Fibrosis before she was born.  At that time, there weren't many medicines to help with her disease.  At her peak she was taking 21 pills per day.  Since then, more medicines have been discovered and approved.  At 2, she started taking Kalydeco which unblocked her pancreas and allowed it to function without taking pills.  At age 6, she began taking Trikafta, a revolutionary medicine to help fix the underlying cause of CF.  At 7, we were able to stop her nebulizers that we were doing twice a day, every day.  All of these improvements were thanks to the generosity of donors like you, who have made CF worth investing in.  Though we are moving in the right direction, CF is still something that we fight.  Reagan's annual x-rays show marking on her lungs that get worse each year.  Additionally, she struggles to gain weight.  We had to have a discussion with her team about the possibility of a feeding tube to help with her weight.  As we look ahead, the CF Foundation is putting a lot of funding into gene therapies as the goal of finding a cure gets closer.  Not all people with CF are eligible to take the medicines that have helped Reagan.  For them, the pills and nebulizers are still a daily reality.  With your help, the foundation is able to invest in companies that show promise in helping those with CF.  Breakthroughs in CF have led to breakthroughs in other diseases.  We are always grateful for whatever you are willing to give.  In a world of many unknowns, one thing is certain - we can't do this alone.

The Rally for Reagan Team