Click DONATE TO A TEAM MEMBER for LIGHT IT UP FOR LILLY donations & Destin raffle tickets!!! Then click on Heather Daugherty
Light It Up For Lilly
Date: Sept 10, 2022
Time: Pre-show events start at 6pm & fireworks start at dark!
Location: 3403 S. Farm Road 227 Rogersville, MO 65742
Light it up for Lilly is a fireworks show that raises money for the Cystic Fibrosis Foundation so they can research new meds/treatments and eventually find a CURE for people with CF! There is no federal funding for CF and so it relies on the donations through events like this to accomplish this goal! Come celebrate being back to school and enjoy food, ice cream, face painting, bounce houses, outdoor games before the fireworks show at dark! There is no cost to get in....there will be a place to donate if you'd like though! We will also be selling raffle tickets to win a week at a condo in Destin, FL in 2023! The condo is on the beach and sleeps 8! Tickets are $25 each or 5 for $100! You can donate here & email lillysraffle@gmail.com with your name & how many tickets you would like or you can buy them at the fireworks event! We will announce the winner before the fireworks show! We hope to see you there!!!
Lilly is 13 years old & has cystic fibrosis! She's had 9 surgeries & takes over 45 pills a day! She also does hours of breathing treatments & vest treatments every day to help keep her lungs healthy (the time doubles when she has a cough). She is a competitive gymnaast & spends 20 hours a week in the gym because she loves it & the exercise is also good for her lungs. In Aug of 2020, she started a new medicine Trikafta. It has completely changed her life and that is only possible because of the money we have raised for the foundation! Now we just need to find a final CURE for ALL people with CF so please keep donating!!! Thank you for your support!!!
You can follow Lilly's journey with CF at lillysstriders.com
We will also be walking in the Great Strides Walk for CF on Oct 8th at Rutledge Wilson Farm Park if you'd like to join our team!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.