Aine's Angels

GREAT STRIDES for Cystic Fibrosis is BACK – Sunday, May 5th @ New Canaan High School!

Hi Everyone!! I wanted to Thank You for your previous support for the Cystic Fibrosis Foundation's Great Strides Walk. I am so excited for this year!! As you all know I am a Senior, so I am excited to announce that next year I am going to be a UConn Husky! I am so grateful for all your support, and I can't wait to see you all at Great Strides!!  Let's make it the biggest one yet! - Aine

So here are the details for this year’s walk:

Date: Sunday, May 5, 2024

Location: New Canaan High School
11 Farm Road, New Canaan, CT 06840

Time: Check-in 9:00 am / Walk begins 10:00am

Here are your three (3) talking points for CF this year….

1) We’re not done, there are still 10% of the CF population that CFTR modulators (Kalydeco and Trikafata) do NOT work for — so we need to keep pushing forward to find this next level…

2) Needed FEDERAL Funding for a new generation of antibiotics – support the PASTEUR Act – did you know that most antibiotics were discovered in the ‘50s and ‘60s and that the last generation of new antibiotics was developed in the late ‘80s….SUPERBUGS are getting to be resistant to that generation of antibiotics – we need NEW development!

3) TRIKAFTA is AWESOME! It’s having a dramatic impact throughout the CF population – with FEV scores, weight gain, and and overall improvement in endurance for most CF patients. For Aine – it’s meant consistent FEV’s in the 130 range and improved endurance. She continues to be incredibly active – playing field hockey, ice hockey and running track (Winter and Spring) as a sophomore in high school…

We can’t wait to see everyone – so join Aine’s Angels ’24…and put Sunday, May 5th on your calendars….

See you soon!

Jim, Tricia, Fiona and Aine