Rewind over the last year, and it can be described as a year of numerous highs and lows, a year of every emotion felt. Worry, angst, exhaustion, tears, smiles, belly laughs, commitment, relief, and continued hope. From Marlee's first in-patient hospitalization to receiving our first package of Trikfata, to the troubled and unnecessary Colorado Prescription Drug Advisory Board review of our life-saving drug, and then to learn that Marlee's body is responding to Trikafta in a way that brought our family to tears, tears of relief and immense gratitude. Looking back, we could call it the year of Trikafta. And we can proudly share what so many others have shared, that Trikafta is truly a game changer. Overall, Marlee has had a very healthy year. She typically catches the latest "bug" that is making its way through school, but with the extra treatments and her use of Trikfafta, she is back up and going in no time.
Marlee continues to thrive and is such a bright, shining star! In her second year of preschool, Marlee will start Kindergarten this Fall. Her excitement is off the charts, as school is one of her favorites. Each day is spent experiencing all life has to offer while displaying an unmatched level of empathy for those around her. Marlee loves horseback riding, dancing, dirt biking, shopping, skiing, snowmobiling, and being with her cousins. This summer, she will experience her first trip on an airplane to meet and become a Disney princess in Orlando.
Through our continued joy and our year of Trikafta, it is important to remember that not all of our CF Fighters have access to this miracle drug. So, we must continue to join together and support the larger mission to ensure that CF stands for Cure Found.
We would love to see you at the Denver Great Strides walk on May 11, 2024! If you want to join our team, please select "Join this Team." If you prefer to donate and join us at a later event, please select "Donate to a Team Member."
To learn more about Marlee, upcoming 2024 fundraising events, and our fight against Cystic Fibrosis, please visit www.marleesmagic.com.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.