My Great Strides Story
“ Hello everyone, my name is Aluna! I am so happy that you want to participate with me through Great Strides for CF! If I see you at an event maybe we can hop in some puddles or run really fast together with my mom and dad! I love to run, jump, go for bike rides, hike, and pretend to be a dinosaur. I’m not very big and cannot write so my mom and dad Courtney and Justin will tell you a little more about me”.
“My mom and dad found out I had CF when I was still in my Mamas tummy. When I was born I had a bowel blockage due to my CF and had to have surgery. I stayed In the NICU for nearly two weeks and then I was able to go home to meet all the people that love me”.
“Today I take pills called enzymes for every six grams of fat I eat. I also do a physical therapy vest treatment 30 minutes a day, and do a Nebulizer treatment to help break up mucus. My body cannot do these things on its own. When I’m not doing my treatments I like to play with my dog, blow bubbles, color, and dance!”
“Thank you all for taking the time to get to know me! I look forward to meeting you in person during one of the CF events! Spread the word and Let’s stride together to help find a cure for me and my CF friends!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.