Our Great Strides Story- Travels With Charlie
Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal! Our sweet baby boy Charlie was born January 17th, 2024 at 34 weeks and 6 days and was admitting to the NICU for monitoring. On January 31st, 2024, we found out that Charlie’s newborn genetic screening and second tier of that testing confirmed that Charlie is affected with Cystic Fibrosis.
As Charlie’s mom and dad, it is our goal to help raise awareness for Cystic Fibrosis and donate to the Cystic Fibrosis Foundation in order for their wonderful research team to continue to make huge strides towards finding a cure for CF.
Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.