Travels with Charlie
Our dear friend's sweet baby boy Charlie was born January 17th, 2024 at 34 weeks and 6 days and was admitted to the NICU for monitoring. On January 31st, 2024, they found out that Charlie’s newborn genetic screening and second tier testing confirmed that Charlie is affected with Cystic Fibrosis.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
It is our team's goal to help raise awareness for Cystic Fibrosis and donate to the Cystic Fibrosis Foundation in order for their wonderful research team to continue to make huge strides towards finding a cure for CF.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
Please consider donating or joining our team to help make a difference in the lives of all people living with CF.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.