In 1993 I lost a younger brother to Cystic Fibrosis. It wasn’t until this point that my siblings and I were tested for CF. I was the only sibling diagnosed after losing a brother that I would never get to know. What was a devastating time for my family, evolved into an ongoing miracle. CF has taken its toll on my family's life from constant treatments and medications, to hospital visits and stays. My first hospitalization was at the age of 10. The next couple of hospital stays were due to my pancreas in which I had to be on liquid diets for 3 days. In 2001, with my lungs functioning at a low level and terrified with my family, I fought through my battles and came out with my lungs functioning at 104%.
By the age of 20, I was down to only three hospital visits which was great success for me. I had managed to stay healthy and strong from the years 2006-2012. I had graduated high school and moved onto college. I knew leaving for college would be an exciting but difficult time due to my illness. Throughout college I struggled to balance my time between school, medications/treatments and a social life. A constant battle between these led me to an in-home hospitalization in 2010. My lung functions dropped down to 60%. I received a PICC line and self inserted antibiotic drips every 12 hours. On top of my stressful classes and pressure to get good grades, I had to pay extra attention towards my health. Tiresome nights and exhausted days, I got through my hospitalization.
In September 2016, I was hit hard with medical insurance issues. I started drowning in medical bills. After being denied financial assistance from Kaiser and Medi-Cal, I stopped taking medications I could no longer afford. In January 2017, I was knocked down with pneumonia and hospitalized for 2 weeks. Returning to my baseline lung function, I was ready to go back to the real world. Ten days later I went back into ER with a high fever and chest pains. I was admitted for another 2 week stay in February, 2017.
Living in LA has been quite the challenge for me health wise. I came to a point where I was struggling with being hospitalized every 3-4 months. Seven PICC lines later and I finally received a port for on-going antibiotic treatments. The end of 2018 and the beginning of 2019 was an especially hard time for me as I was in and out of the hospital during the holidays. With great support from family and friends, I made it through three back to back hospital stays.
This has been a tough year for me physically, financially and emotionally, although I have been blessed with the best support. I am reaching out again asking family and friends to donate to the CF Foundation to help my cysters and fibros who also struggle with and battle this disease. My hope is to raise money for research to help the medical field develop additional drugs so that one day CF will no longer stand for Cystic Fibrosis, but for Cure Found.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.