This is the Kamnikar family’s second CF fundraising event! We were so grateful for the donations that were made on Walker's behalf last year. We felt so supported and loved!
This has been quite a year for us. Last year in August, Walker's weight dropped significantly as he stopped eating. We aren't sure why but we had to have a feeding tube placed to supplement his food. The placement was his first surgery which was hard but it was the best decision we could have made. He is now in the 36 percentile of BMI! We have never been that high!
Walker gets 2-3 medication nebulizers and percussion therapy along with multiple medications to fight his Cystic Fibrosis daily. He also attends UCSF Children’s hospital on a 3 month basis for the rest of his life to check/treat for bacteria, lung/pancreas function and weight gain.
There is a new medication that came out for cystic fibrosis called Trifalta. It has been covered all over by the news which is great however walker is part of the 10 percent of those living with CF that do not qualify.
The CF foundation has made a pledge to find new treatments to help the 10 percent that do not qualify for the new medication as well as find a cure :)
Currently CF patients' lives are cut way to short, but with fundraising and research we hope that won’t be the case For much longer. With that said We walk for Walker and all others affected with Cystic Fibrosis.
Please help in our fight by making a donation to our team “Team Walker” as we walk on May 3rd at Heather Farms in Walnut Creek CA. Thank you for making a difference in Walker's life.
Help add tomorrows for our son and others!
Shaun & Jenny Kamnikar
By making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a we fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.