It's about that time again! Great Strides, the annual fundraiser by the Cystic Fibrosis Foundation is right around the corner and Pebbles Posse is once again walking for a cure. We found out Layla was diagnosed with Cystic Fibrosis when she was just 2 weeks old. This was a huge impact to our Family's life because we had no idea what CF was. Layla takes up to 30 enzyme pills, breathing treatments, chest percussion treatments on a daily basis along with 3 separate types of vitamins. She has to get regular blood drawn, xray and throat swabs. If Layla gets just the slightest cold, it impacts her dramatically. She loses weight, treatments double up, possible antibiotic additional treatments. We travel to Oakland for her CF clinic days every few months. Layla is such an amazing, energetic, loving little girl & she is our fighter. One of the strongest I know . We have seen an improvement since she has been on Orkambi and there are more medications that will be available for Layla as she gets a bit older.
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your 100% tax deductible gift helps Layla and CF patients like her lead full and happy lives by funding the research that extends their lives and enriches their quality of life. Together, we can add tomorrows for people living with CF.
To learn more about CF and the CF Foundation, please visit www.cff.org.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.