It's about that time again! Great Strides, the annual fundraiser by the Cystic Fibrosis Foundation is right around the corner and Pebbles Posse is once again walking for a cure. We found out Layla was diagnosed with Cystic Fibrosis when she was just 2 weeks old. This was a huge impact to our Family's life because we had no idea what CF was. Layla takes up to 30 enzyme pills, breathing treatments, chest percussion treatments on a daily basis along with 3 separate types of vitamins. She has to get regular blood drawn, xray and throat swabs. If Layla gets just the slightest cold, it impacts her dramatically. She loses weight, treatments double up, possible antibiotic additional treatments. We travel to Oakland for her CF clinic days every few months. Layla is such an amazing, energetic, loving little girl & she is our fighter. One of the strongest I know . We have seen an improvement since she has been on Orkambi and there are more medications that will be available for Layla as she gets a bit older.
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your 100% tax deductible gift helps Layla and CF patients like her lead full and happy lives by funding the research that extends their lives and enriches their quality of life. Together, we can add tomorrows for people living with CF.
To learn more about CF and the CF Foundation, please visit www.cff.org.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.