Thank you to everyone who is donating to and walking on Team Reis. This is our seventh year. We are so grateful for your continued support for this cause. Reis is almost seven years old. She remains strong and healthy and continues to grow by leaps and bounds. She has been on Kalydeco since age 2. We are hopeful that the fact that she was able to start so young will hopefully prevent many of the long term problems associated with CF. We are eagerly following the development of Trikafta. It is very exciting that it may have the potential to provide hope for so many more people with CF.
CFF was very important in raising funds to develop Kalydeco and Trikafta. We know that it would not have been possible if events like this and groups like CFF didn't raise funds to develop new treatments for those living with CF. We stride in the hopes of raising funds for continued research into drugs for Reis and others. We are so grateful to have hope for the future , thanks to these medications.
Continued funding for research is so important. Much of it is not government funded and so each and every dollar counts. Gene therapy also still remains a dream for a permanent cure. Please help us in this goal.
Every day, science and medicine learn something new about CF, and every dollar donated goes towards helping make those advances possible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.