Thank you to everyone who is donating to and walking on Team Reis. This is our seventh year. We are so grateful for your continued support for this cause. Reis is almost seven years old. She remains strong and healthy and continues to grow by leaps and bounds. She has been on Kalydeco since age 2. We are hopeful that the fact that she was able to start so young will hopefully prevent many of the long term problems associated with CF. We are eagerly following the development of Trikafta. It is very exciting that it may have the potential to provide hope for so many more people with CF.
CFF was very important in raising funds to develop Kalydeco and Trikafta. We know that it would not have been possible if events like this and groups like CFF didn't raise funds to develop new treatments for those living with CF. We stride in the hopes of raising funds for continued research into drugs for Reis and others. We are so grateful to have hope for the future , thanks to these medications.
Continued funding for research is so important. Much of it is not government funded and so each and every dollar counts. Gene therapy also still remains a dream for a permanent cure. Please help us in this goal.
Every day, science and medicine learn something new about CF, and every dollar donated goes towards helping make those advances possible.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.