In August of 2019, Walker's weight dropped significantly, down to the first percentile. Because of this, he underwent surgery to have a feeding tube put in to supplement his weight. He also gets 2-3 medication nebulizers and percussion therapy along with multiple medications to fight his CF daily. Walker attends UCSF Children's hospital on a continuos basis and will for the rest of his life to check/treat for bacteria, lung/pancreas function and weight gain. The CF Foundation has made some breakthroughs, including the release of a new drug called Trifekta, a breakingnews production that's believed to be changing the lives of people with CF. While we are excited about this, Walker is part of the 10% of rare genetic mutations that does not qualify for these new drugs. The CF Foundation has made a pledge to design a new drug catered to that 10%, as well as find a cure. There are approximately 30,000 Americans living with Cystic Fibrosis and struggle every day just to breathe. Great progress has been made for those who have CF, and for that we are grateful. However, there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. Please join us in the race to find a cure. You can help by joining our team to fundraise or by making a donation to our team "Team Walker". I will be joining my family as we walk for a cure on May 3rd at Heather Farms in Walnut Creek, CA! Thank you for making a difference in the lives of all of those affected by Cystic Fibrosis!
Will you join me and support my fundraising goal? Please help us add more tomorrows to our future with Walker!