It's the time of year when I need to ask for you to consider donating to my cause, the Cystic Fibrosis Foundation. I of course care so much about this foundation because they are working so hard to find a cure for my daughter, Kyleigh. For those of you who do not know, Kyleigh was born with a genetic disease called Cystic Fibrosis, a gene inherited from both me and her father. She is, I guess, one of the lucky 30,000 Americans living with cystic fibrosis every day.
We were always told, at the start of this journey, that when she was old enough getting a double lung transplant would cure her cystic fibrosis. We soon learned that was not the case! While Kyleigh received a double lung transplant on March 4, 2018, she has continued to struggle with this awful disease that not only affected her lungs, but continues to infect her sinuses, her digestive system, and her reproductive system.
The crazy thing is, that while she turned 26 years old this year, my medical insurance wanted to cut her off because of her age. Thankfully we were able to get her extended so she remains fully covered, but I can't help but think of the thousands of kids living with CF who do get cut off from their insurance upon turning 26.
We are still here and the Cystic Fibrosis Foundation refuses to give up on those suffering from CF and the enormous costs of this disease.
On October 1st, I walk for my daughter and I walk for all those who struggle every day because of Cystic Fibrosis. Real progress has been made for those with CF, but there is still no cure for this devastating disease, and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. I will not stop until my daughter is cured of this horrible disease.
Please support me!
Please help me reach my fundraising goal!