Skyler was born in 2005 (before newborn screening) in September 2006 when she was 11 months old I found out that my baby girl had Cystic Fibrosis. I had two options...to hide under a rock and be depressed or be positive and fight this disease for my girl. I chose to rise above and be a strong mom for my daughter. We have been raising money for the foundation for years now, raising over $300,000. She is now 13 years old and going into the 8th grade. She is an active girl and loves sports. Even though she has to wake up earlier then most kids do her hour long treatments or come inside early at night to do her other round of treatments, she doesn't complain. It's apart of her and she knows her treatments are keeping her healthy.
We have made a commitment to the Cystic Fibrosis Foundation to help raise money to find a cure for cystic fibrosis (CF)—a life-threatening genetic disease. We made this commitment because our daughter has Cystic Fibrosis. Skyler is in the 8th grade and keeping busy. She is a strong young girl that isn't letting this disease get her down. Skyler's doctor's checkups have been going good. Skye is a fighter and staying active. For an 13 year old, waking up early to do three breathing treatments and vest therapy then doing it again before bedtime is very difficult on a child but she does it without a fuss. She knows that all of this will prolong her life.
Here’s where my special request comes in…we are asking you to help us meet this goal by making a generous contribution that will support the research and care programs of the CF Foundation and help find a cure for Skyler. She and 30,000 others like her need our help. It’s important for you to know that the CF Foundation is a very efficient organization and that more than 88 cents of every dollar of revenue raised is used to support CF research, care and education.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.