Rose Martini

My Great Strides Story

My name is Rose Martini and I was diagnosed at 2 days old. I immediately went in for surgery. This was a huge shock to my very young parents. In 1976, my parents were told I would live to 5 years old if I was lucky. Apparently, I am lucky, I am 48 years old and live a beautiful life that I am incredibly grateful for. 

Cystic Fibrosis can be cruel and relentless. I have had so many setbacks and scary events in my life but I've also had incredibly rich experiences and adventures. Some of this is luck but so much of what I have been able to experience is due to the incredible medical advances made in my lifetime. This has been possible because of grass roots organizations working tirelessly to raise money towards a cure. I am forever grateful. 

I live with my handsome husband, David and our sweet dog, Rocco. We love living in Sonoma County. I am a singer/songwriter and teach music.  Exercise is a huge part of my life- I believe movement is medicine. I have the best family and friends who show up for me even when I am at my lowest. Like I said, I am lucky! 

If you would like to join our team, Rosie's Rascals, we'd love to have you walk with us. You can also simply donate any amount if you are so inclined. Thanks so much for taking the time to support this incredible cause. 

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.