Bennett was diagnosed with Cystic Fibrosis at 8 days old. As parents it is so difficult to hear that our child's life expectancy may be shorter than our own. This drives us to support the Cystic Fibrosis Foundation and all of the amazing research they fund that has improved both quality and quantity of life for those with CF. We remain hopeful that Bennett will live a fulfilled and long life in keeping up with his daily preventative treatments. It is our hope to participate in the Great Strides walk every year with our family and friends to celebrate any triumphs, small or large, that Bennett has had in fighting CF.
Why name our team "Sweet & Salty"?
CF is a salt wasting disease so they can not reabsorb salt lost through normal perspiration. This means when we kiss his sweet forehead we can taste the salt on our lips. We even added salt to his milk as an infant. To combat CF Bennett follows a daily regimen of breathing treatments, chest percussions, and taking digestive enzymes every single time he eats. We are thankful for his fantastic medical team and the care they provide for our sweet boy.
We hope that you can walk with us on May 4 in Allentown!
If you are not able to join us at the walk then we hope you might consider donating money to the CFF through our team to help fund research that may be life changing for Bennett!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.