I cannot believe how fast this year is flying by. I am so late in starting my fundraising efforts this year for our Great Strides Walk coming up on May 19th. I may be late in getting this message and appeal out but my passion is as fierce as ever! As always I get my inspiration from Liam, who is wise beyond his years. He will be graduating into double digits this year on his birthday in July. as he turns 10. He is not the little boy who has always just accepted that he needs to do his medications and treatments to keep healthy. He is growing up and he clearly has a significant understanding on how CF influences his present and his future. As with any 9 year old, when friends and activities are going on, he pushes himself to keep up with everyone else, and he does an excellent job in the moment. He also knows that when the dust settles it will take a toll on him and he will need to rest, take in extra calories and fluid to supplement his body to feel better.
Recently, when I was alone with Liam he asked me this question... "Nene do you think they will find a cure for CF by the time I get to college?" Oh boy!! In that moment it took all of my strength, courage and whit to stay in the moment ,not break down and give him the best answer I could. "Well, buddy I believe that they will. Everyone is working very hard,including you by taking your study drugs and having all that testing done, to check on how well the study drugs are working for you." Ok, I thought crisis averted, but then the follow up question came.... "What about before I get to high school?" I simply replied "I hope so, everyone is working very hard to find the cure."
It is that on that positive note I will continue to focus. Today so much is happening with the science and technology and new drugs in the pipeline that I truly believe there will be a breakthrough and Liam and others will get their cure. We are at a crossroads now because of all the support you have shown over the past years. We can't stop now!!!! My family and I will not rest until a cure is found and we will continue by raising the funds that support the science that WILL CURE CF.
I am asking for your continued support and ask that you consider making a donation to this years 2019 Great Strides Walk. We would also love to have you join our team, fundraise and walk with us!! It is a wonderful family event and we welcome all. Donating is easy, just click on the URL below to donate, join our team or both. I am truly thankful for all of you and I thank you from the bottom of my heart.
With deepest appreciation,
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.