Our Great Strides Story
It was our honor and privilege to welcome Declan into this world just 4 months ago. Our bundle of joy, not yet 24 hours old, had to be taken into surgery for his intestines courtesy of Cystic Fibrosis. There were some further speed bumps in the road to recovery, but we ultimately were able to bring our little nugget home nearly 5 weeks later.
We are super appreciative of his teams from Albany Med Health System that kept our kiddo on track to where he needed to and needs to be. The NICU staff, the Pulmonary/CF team, gastroenterology and everyone that’s helped. Thanks to them, we’ll be strutting our stuff come May 18.
We walk for a cure for all people with cystic fibrosis. By joining our team or donating, you too can help in this worthy cause. Every bead of sweat and dollar goes to innovations like Trikafta and the many more to come.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.