Rob fought this disease until 2001. He had a notebook that he wrote something positive in everyday and having CF was not an excuse for him to give up. He was a fighter. I learned so much from him. I miss our conversations, him giving me big brother advice, he was so smart. I loved giving him style advice & helping him shop for his 1st job interview, his 1st date CF took away an amazing person.
We love you Rob
Each day without you is one day closer until we are reunited with you
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe. There are approximately 30,000 Americans living with cystic fibrosis -- a rare, genetic, life-shortening disease. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.