The last year has been challenging for everyone. Adjusting to a new normal of masks, social distancing, isolating ourselves to protect others, learning virtually, and for some- working from home. Add to the challenge having a loved one at home that is extremely vulnerable to the virus that we are all trying so hard to avoid and enter what has become one of the most difficult years of our lives and of Brayden's. The walk will not take place in person this year but we all still must join together and do what we can to continue to raise money for the Cystic Fibrosis Foundation. We are not giving up on finding a cure for this horrific disease even when it seems like the universe is trying to keep us all down. Through all of the trials and tribulations of the last year and a half we have become very aware of how crucial it is to continue our fight against CF and to protect our son and so many others that are affected by this disease. The Cystic Fibrosis Foundation needs us, all of us, to continue to raise money so they can continue to fund research and the science behind one day finding a cure for this awful disease. If it weren't for the scientists and the drug companies working together, there never would have been the breakthrough CF drug-Trikafta that so many CF patients are taking currently and experiencing life changing improvements as a result of. As of this summer our own little angel should be eligible to begin taking Trikafta himself and we are so hopeful and thankful for something that could potentially make his daily life not such a living hell for a change.
Brayden has been such a little trooper over the last year and a half. He has navigated this pandemic with more patience than most of us adults and has really gone with the flow and embraced this "new normal" that he calls life. Although he misses school and his friends most of all, he has managed to stay incredibly healthy even through a pandemic. There were no stays in the hospital at all for all of 2020 and that was a huge milestone for Brayden since he has not had a full year without at least one hospital stay since before he started preschool. We are incredibly grateful that we have such an amazing support system in our family and that everyone knows how vital it is that Brayden stays safe and healthy. Brayden still goes through his daily routine of breathing treatments and airway clearance and a lot of medicines but we think that even Brayden was proud that he stayed healthy and out of the hospital in 2020. At 8 years old, Brayden shows so much resolve in keeping himself on the right track and away from all the things he loathes so much about the hospital. Brayden loves to play video games, he enjoys all of the Avenger movies and anything to do with Ironman. He has become so independent over the last year it almost makes us sad to see that our little man is growing up so fast. He is intelligent and also a little jokester. He loves to hide around the house and scare you if he can. We spend a lot of time playing board games, Uno, building things, and making crafts. Brayden loves to ride his bicycle and will be on it morning, noon, and night if he can. He loves his trampoline and he is even learning how to shoot a compound bow. It was a year of finding things that allowed Brayden to still be active and outside but away from people and he has picked up many hobbies thanks to the pandemic.
Brayden has been put through more than any child should ever have to go through in a lifetime. He is doing well despite the circumstances we are all under right now. Anyone that knows us or Brayden knows how vulnerable he is to COVID-19 and we are incredibly appreciative to our employers and co-workers for always thinking of us and knowing that our goal is to keep ourselves safe so we can keep Brayden safe. Even though we won't be gathering together to walk as a team on May 16th like we would love to be doing it is still very important that we join together virtually and show we are all here in support of our little angel-Brayden. He is such a kind hearted, sensitive, caring, and wonderful little boy and he deserves so much out of life. This is our opportunity to help give Brayden and so many others a long and healthy future.
Please join our team and "walk" with us on May 16th! If you cannot participate please consider making a donation to our team so we can reach our goal and help raise money for the Cystic Fibrosis Foundation. Help add tomorrows for Brayden and so many others affected by this devastating disease!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.