Renee And Stephen Bernardi

I'd like to introduce Reese, our 14 year old daughter. She's a teenager with all the sass, but is such a sweetheart and is truly an amazing individual. Reese continues to amaze us in school (8th grade).  She continues to play basketball and this fall/winter she played on three teams; her school team, a local CYO team, and our town Travel Team.  She starts her AAU season soon and plans to play throughout the summer.  She has certainly found her passion.  She is a beast on defense!  

As you can tell, Reese is a busy girl. She does all this while having cystic fibrosis. Reese gets up earlier than most for school so that she can get her 30 minutes of treatments done. She also has to make time in her busy schedule for her evening treatments (another 20 minutes). She takes her enzymes with every meal (to help with her digestion) and does this all without complaining! Reese is a very healthy girl, a model patient at her clinic every visit! We could not be happier with her current health.

Trikafta is the first triple-combination therapy available to treat patients with the most common cystic fibrosis mutations. FORTUNATELY, Reese qualified for this medication and started taking it in 07/2021, with great results.  After almost 3 years she still breathes better/ easier and coughs less.  Her treatments have changed giving her back some time during her AM/ PM treatments.  Her breathing test results are still off the charts and her CF team is so proud of her continued good health!  We want to thank each and every one of you who donated, who have walked, who have shared or even just sent love and support.  Without you, Reese would not be where she is today!  

By donating and/or walking with us at the Great Strides event, you can help accelerate the Foundation’s pursuit of new therapies and provide vital support to meet the needs of the CF community.  There is still much work to be done and your participation will help us get one step closer to ending this terrible disease.  Let’s make CF stand for Cure Found.