It's that time of year! HAPPY CF MONTH! ❤
Life story: For those of you who don’t know me, I was diagnosed with cystic fibrosis at the age of 2 years old after my health was failing and I could not maintain weight. For those of you who don’t know what cystic fibrosis is, it is an inherited life-threatening disorder that damages the lungs and digestive system. Cystic fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts, and passageways. I have gone through countless medical procedures and surgeries throughout my life that have mostly all been cystic fibrosis related trying to maintain my health. There is no cure for this disease, however the scientific research and developments have been promising over the last few years aiding in this direction. I was lucky enough to be eligible to start a miracle drug called Trikafta in 2019.
Trikafta has made such a tremendous impact on my life, as well as hundreds of others lives so far. Without fundraising and awareness we would not have these scientific advances that are saving lives by the day, including my own. I have learned to be so grateful because I am 30 and years old and thriving and never imagined making it this far in life. I have been gifted the ability to help make a change for younger generations who will hopefully one day have the opportunity to be cured of this disease.
I also want to give a huge shoutout to my team members who have walked with me in this walkathon and most importantly through life for these past 30 years . I love you all so unbelievably much and I am so grateful for the love and support you all have given me.
We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.