Dear Friends & Family,
Well, Another year has come and gone and my little boy is not so little anymore. Christopher David Motta Jr. aka ”CJ” is turning into a little man. On 2/25/2022 he turned 12 can you believe it!? CJ continues to amaze us every day. You would never know to look at him the monster he is up against. However, this past year has been another great year for him!! Due to Covid we have decided to keep him virtual for school. While most struggle with virtual, CJ is doing CJ is doing phenomenal. His grades are improving tremendously as is his confidence and attendance. Let's also not forget about how well his health has been doing. His pulmonary function test (PFT) are the best ever and he has only been sick maybe one or two times in the past year. This year he also qualified for a game changing drug called Trikafta!! This drug would've never been put on the market if it were not for your donation so thank you. He's been on it about a month and he's doing phenomenal. This medication helps treat the underlying cause of cf and prolong life expectancy.
As you may know Cj is a unique kid. He is a dream come true. He has a smile that can light up even the darkest of days. He is what keeps me going. He is brave and has taught me how to be strong and never give up. He is a miracle. He can do anything he puts his mind to and he continues to prove it. He has taught me that every day is a blessing and to always try to look at the cup is half full. He loves video games, swimming, drawing, editing videos, hanging out with his friends, YouTube and of course spending time with family. (Which he misses very much.) I guess you could say CJ is a typical year 12 old. CF can’t hold him back. He is a fighter!
As most of you already know, CJ was diagnosed with Cystic Fibrosis in March 2010, at just 2 weeks old. Cystic Fibrosis is also known as CF or as children like to pronounce it, 65roses. CF is a chronic, progressive, and frequently fatal genetic (inherited) disease that affects the lungs & digestive System of about 30,000 Americans both young and old (70,000 world wide). This disease substantially impairs normal respiratory and digestive functions, making something as simple as eating or breathing and breathing an everyday challenge.
The defective gene and its protein product cause the body to produce unusually thick, sticky mucus. CF does not follow the same pattern in all patients, it affects different people in different ways. CF can cause various other medical problems making CF a very complex disease.
Currently, there is no cure for cystic fibrosis. Too many lives are being cut short by this horrible disease. We need a cure now more than ever! People living with Cystic Fibrosis are forced to spend several hours a day taking medications, doing treatments as well as airway clearance. Today, thanks to donations from people like yourself, advances in research and medical treatments, many people with the disease can now expect to live into their 30s, 40s, 50s & beyond.
Since Team CJ was formed in 2010, we have raised and donated over $100,000.00 to the foundation in CJ’s name. Without you this would have never happened. Thank you! This means more to CJ and I than you will ever know. The Cystic Fibrosis Foundation is very close to finding a cure and without donations from people like yourself, they are unable to continue this life saving research. By making a donation again this year, you are helping to fund research and care programs of the CF Foundation and families like mine. Paving the road for a much needed cure. A cure that will impact the lives of those with the disease including my little man. The only thing still standing in the way of a cure is money. I know the cure is on the horizon, I can feel it!
With that said, we took a break last year but we're back on the fundraising trail. I understand right now that times are hard but we are asking that you please consider making a small donation. Please help me hold on to the hope that one day soon, I will be able to tell CJ that thanks to your donation and continued support, together we were able to make CF stand for “Cure Found." If not a cure for CJ, then a cure for the next family going through this. Keep in mind every penny counts and gives CJ as well as other children living with this a chance for a brighter tomorrow.
Thank you in advance for your continued support, in my fight for my son's life as well as others suffering from CF. You can also now “like” us on facebook by going to https://www.facebook.com/SupportTeamCJ . Keep up to date with our latest efforts and events.