Remi Bernardi

There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?

My 13 year old sister Reese was born with Cystic Fibrosis and like many other families, we were shocked. We did not know what our future held for us as a family and I don't think we ever thought we'd be where we are today, with the healthiest CF kid ever. Every single year Reese continues to impress us, her doctors and every person she comes in contact with. Watching Reese and my parents care for her health the way they do with every treatment, pill and appointment is inspiring and has given me courage in my own parenting journey.

These last few years I've noticed a huge change in Reese. She's turned from our silly baby girl into a super cool "teenager" that I'm not even sure I'm cool enough to be around, but she still loves our sister days for now. Even when we bring her two crazy nephews along. I am so thankful we have the bond that we do, annoying each other sometimes but loving each other always. I hope to see her become a strong leader in her constantly expanding friend group, finessing her skills on the basketball court and making her way to becoming a really cool teen! Reese knows whatever the next adventure is, I know that Lennox, Levius and I will be close by.

Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, with medications like Trikafta that have been so helpful to many, including Reese, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.  

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!