Reese was born on April 12, 2013 in Plattsburgh, NY to me and her father, William Brown III. She was a perfectly beautiful baby girl at 6lbs 12oz and 20 1/2 inches long; but just 2 weeks later, Reese was diagnosed with Cystic Fibrosis from her newborn screen. The diagnosis was earth shattering.
Reese is now a happy and (for the most part) healthy 6 year old. She enjoys school, dance class, cuddling her cat Jazz and anything to do with art. She understands that she has CF and never complains about taking her medications or doing her daily breathing treatments but our hope is that we can find a cure so these things don't have to be part of her daily life anymore.
Cystic Fibrosis is a life-threatening disease that affects the cells that produce mucus in the lungs, sweat, and digestive juices. It is an inherited disease and occurs when a defective gene causes these secretions to become thick and sticky, plugging up tubes and passageways in the body. Cystic fibrosis in children is a chronic, progressive disorder. Recent advances in the care of patients with cystic fibrosis combined with an aggressive, early approach to treatment has resulted in much better rates of survival. The average life expectancy in 2018 was 37 years old.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.