PLEASE JOIN OUR GREAT STRIDES TEAM
The CF miracle is one of the most remarkable stories in modern medicine. Cystic fibrosis genetic testing is now almost universal and mutation-based drug prescribing is standard practice. This offers a template for other diseases looking to translate the promise of precision medicine into patients' daily lives.
New studies could help researchers find ways to treat other airway diseases, including COPD and asthma. There is new research on stem cell-based diabetes treatment, a new drug that reduces the acute complications of sickle cell disease in adults and children, and advances in cancer treatment. Cystic fibrosis research is impacting our global community in ways we never imagined!
For our family, our son Matt has made huge strides. His lung function is up, and he has been able to get off some of his treatments. Matt and Olivia are wonderful parents to their almost 3-year-old daughter Harper. It’s an amazing life we only dreamed of years ago! We are truly blessed.
However, we continue to need to support research for our changing CF family because we do not yet know the unintended consequence of new classes of drugs as our CF population grows older. There is new research on difficult-to-treat infections, the unique type of diabetes that is common in people with CF, testicular cancer, gastrointestinal issues, and its relationship with CF males and how modulators affect mental health, memory, concentration, and the relationship of mental health and physical health. Genetic therapies will create improved results for all patients with CF regardless of their mutation, and eventually a one-time cure.
We are not done with our research for a cure for cystic fibrosis. There are treatments for some/not all, but the cure has still not been found.
Will you walk with us this year? Create a team no matter where you are located. Could you help us raise money for a cure? Our work is not done. Please join us. We thank you from the bottom of our hearts. You have made a difference. Let’s work together to make CF stand for Cure Found!
Love, Deb, Art, Matt. Olivia and Harper Friedson
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.