Andrea's Alliance

Friends & family,

I was diagnosed with cystic fibrosis at 10 days old, a genetic chronic illness that affects the lungs, digestive system, and almost every function of the body. Since then, I was handed a challenge I didn't ask for but continue to fight and win. Statistically, I wasn't supposed to hit my teens, but that never deterred me from graduating high school, college, finding full-time employment, and celebrating 10 years of marriage in March 2024 to my best friend. This is because the CF Foundation has continued to funnel money raised by you to research, scholarships, grants, and working to give us the best opportunity for the greatest life we can have.

In late 2019, a triple-therapy drug named Trikafta was released! This drug is an absolute game-changer for people with my set of genes. It has given me the closest thing to a cure, correcting the underlying problem with the disease. This drug became a reality because of your donations! YOU are part of the reason it exists! And because Trikafta exists, I have been able to have 2 beautiful children!

Life with cystic fibrosis is an interesting one! It's filled with medications, pills, nebulized treatments, chest percussion therapy, hospitalizations, PICC lines, sinus surgeries, and much more. It affects almost every decision I make, but it's given me a strength that is only learned from a chronic illness. The strength and determination to push through feeling sick that day because you still need to go to work. The drive to live the life I wasn't supposed to have. To continue to laugh in the face of the disease that wants to badly to take you down. But I don't fight alone. I have my husband, my children, my friends, my family, my coworkers, my care team, and my God. Together, through fundraising, prayer, encouragement, and help, we can continue to fight this thing until it's done and CF stands for Cure Found.

Thank you for taking the time to check out my fundraising page. Cystic fibrosis is considered a "rare disease" and does not receive government funding for research. All of the funds for new drugs, treatments, and therapies comes directly from people like you! Join my team (even if you can't come to the race!), donate any amount, and help cheer me and my fellow cysters and fibros on as we take on CF each day.

Love you all,

Andrea Jones