It is that time of year again! Time to start fundraising for our Tyler Great Strides walk. First, I want to thank you all for your continued support to help find a cure for CF.
I am a sophomore at the University of Oklahoma (Boomer Sooner!). I still have to make time to do my treatments twice daily and take up to 40 pills a day. It is important for me to continue these treatments so that I stay healthy for when they find a cure. CF is a part of my life but it does not control my life! This is why it is so important for us to raise money for a cure.
Hopefully, you have seen the progress which has been made the past few years to help some of the CF patients. So far, there is no cure, but a drug, Trikafta, was approved by the FDA at the end of 2019 and has been very beneficial for patients with one copy of the Delta F508 gene, LIKE ME! I have been taking Trikafta and I do feel like it is truly helping me, but I have had some side effects and still must take antibiotics when I get sick. Although I have seen improvements because of Trikafta, I still continue to do my breathing treatments twice a day and take up to 40 pills to keep myself as healthy as possible. CF is part of my life, but it does not control my life! My fight will not be finished until there is a cure for ALL people with CF.
I hope you will consider making a donation to our team, Maci’s Miracle Miles, to help us reach our goal of $15,000. You can also join our team and walk with us on April 29. Your generous gift will help accelerate innovative research and drug development, as well as advance care and advocacy. Plus, your gift is 100% tax deductible.
Thank you again for your continued support and we hope to see you on walk day!
Until It's Done!
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