It is that time of year again! Time to start fundraising for our Tyler Great Strides walk. First, I want to thank you all for your continued support to help find a cure for CF.
I know it is probably hard to believe that I am now 19 years old a Freshman at OU, time flies! Even at college, I still have to make time to do my treatments twice daily and take up to 40 pills a day. It is important for me to continue these treatments so that I stay healthy for when they find a cure. CF is a part of my life but it does not control my life! This is why it is so important for us to raise money for a cure.
Hopefully, you have seen some of the progress that has been made in the past few years to help some of the CF patients. So far, there is no drug available for my CF mutation but that will be changing very soon. There is a drug awaiting FDA Approval right now that will help patients that have one copy of the Delta F508 gene. THAT’s ME!! We know it is not a cure but it helps with the underlying cause of CF. I cannot wait for it to be approved which should be by 2020 – yes – only AFEW MONTHS from now!
I hope you will consider making a donation to our team, Maci’s Miracle Miles, to help us reach our goal of $10,000. Your generous gift will help accelerate innovative research and drug development, as well as advance care and advocacy. Plus, your gift is 100% tax deductible.
Thank you again for your continued support!
Lace Up. Walk. Cure Cystic Fibrosis.