It’s that time of year again! Time to start fundraising for our Tyler Great Strides Walk. I want to thank you all for your continued support to help find a cure for cystic fibrosis.
I'm Maci and I am a Junior at the University of Oklahoma (Boomer Sooner!). I am involved in Kappa Kappa Gamma sorority and I love spending time with my sisters. My major is Health and Exercise Science, and I dream of becoming a PA and helping others who are sick. I love coming home and visiting my family, especially my niece and nephew. Since I have been in college, I have taken the role of taking care of myself on my own. I strive to live my life to the fullest!
Hopefully, you have seen the progress which has been made in the past few years to help some of the CF patients. So far, there is no cure, but a drug, Trikafta, was approved by the FDA at the end of 2019 and has been very beneficial for patients with one copy of the Delta F508 gene, LIKE ME! I have been taking Trikafta and I do feel like it is truly helping me, but I have had some side effects and still must take antibiotics when I get sick. Although I have seen improvements because of Trikafta, I still do my breathing treatments twice a day and take up to 40 pills to keep myself healthy. CF is part of my life, but it does not control my life! My fight will not be finished until there is a cure for ALL people with CF.
I hope you will consider joining in our fight by donating to my team, Maci’s Miracle Miles. Our goal is to reach $15,000. You can donate online at http://fightcf.cff.org/goto/macidrewry or if you would prefer to mail a check, please make it out to CFF and send it in the self-addressed enclosed envelope. Your generosity will support the life-saving mission of the CF Foundation. Your gift is 100% tax deductible. You can also join our team and help us make CF stand for CURE FOUND! Also, if you want to join my team at the walk on May 4th, please register through the link above.
Your generous support will support the life-saving mission of the CF Foundation. Your gift is 100% tax deductible.
Thank you again for your continued support and we hope to see you at Great Strides Walk!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.