My Great Strides Story
In April of 2016, I was diagnosed with Cystic Fibrosis. This came as a shock to all of us as we did not know my parents were carriers, let alone it runs in the family. I am the first to be diagnosed with CF. Although it is genetic and I had it my whole life, I went undiagnosed for 13 years. We always thought I was just going to be smaller than everyone my age. Little did we know, there was a reason. Life with CF has had many ups and downs. CF for me looks a lot different. I never showed any symptoms of lung infections. I had pancreatitis multiple times which made my doctor do genetic testing for CF. It is very rare to have CF in just your digestive system. In March of 2021, I underwent a 10+ hour surgery to have my pancreas removed and an islet cell transplant. Although recovery was rough and there were many times I felt as if I couldn't push through anymore, I made it. I have a better quality of life. I can do everything I love without having to second guess if I am going to be sick or not.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.