My Great Strides Story
Our family endured many hospital stays over the years and all the emotions and hardships that go along with that multiplied by two beautiful girls, both with CF! We also had many great days as a family. Including beginning our own Great Strides walks in Burnet County beginning in 2015 that successfully ran for 4 years (with the help and direction of many family and friends and supporters)!
We lost Madeline to CF in 2018 at the age of 16. That is just too soon! We decided to take a break, moved a couple times and are now ready to get back into the swing of things.
Savannah has just completed her first year of college and is thriving. Thanks in part to the advanced medications that scientists and the CF Foundation has made. But that wouldn't be possible without generous donors like YOU!!
Many of you know our story but some don't. It has been a hard story that's taken it's toll on the 3 of us. But we are determined to make CF stand for Cure Found. Until it's done!
(There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.)
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
Thank you friends and loved ones!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.