Jo-Ellen La Pata

My Great Strides Story

When our granddaughter was born 10 years ago with Cystic Fibrosis, nearly 30,000 people in the United Stated had it!  Now, nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

This will be my 10th Great Strides walk raising money for Cystic Fibrosis.  Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies.  Elaina is unable to take the newest therapy, Trikafta.  Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining me at the walk either in person or virtually, and help make medical history.