There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis.
Cystic Fibrosis is a genetic disease that causes the body to accumulate a large amount of mucus in most major organs of the body, and without aid the mucus does not move. The build up of mucus in the organs can cause blockages, and a breeding ground for bacteria causing all sorts of infections. Sometimes resulting in decreased lung function, and over time transplants. Mucus can also effect the reproductive system causing infertility. When mucus reaches the pancreas, it causes blockage to the small intestine and unable to absorb nutrients food gives us. Before every meal Jaycee takes 4 pills, even with milk must swallow a handful of pills. It is explained living with CF like breathing through a straw constantly without doing any activates.
Blue Caboose Children’s Fund for Cystic Fibrosis that has made its way to Ft Worth. You may already know their name because Blue Caboose has been very successful in operating the Dallas chapter for 7 years. Seeing all the inspirational work they are doing in Dallas, it was a very easy decision when I was asked to partner as the Ft Worth coordinator.
Blue Caboose was founded on September 12, 2012 by Kelly Colbert. Kelly is also a CF mom and was inspired to help families going through similar life experiences as her own. Her son Jack started the “Jack in the Toy Box” before the 501c was founded, collecting toys for kids that were admitted in the hospital; which then expanded to the Christmas Party. Blue Caboose now offers many programs including the holiday party, back to school drive, family grants, parent/ caregiver dinners, hospital care totes, and a newly founded scholarship. Lariah’s Legacy has also been newly added to Blue Caboose program as they send wind chimes to families after a loss, coping with CF is no task you should feat alone so Blue Caboose also offers advocacy in the schools and workplace or wherever advocacy is needed!
Currently Blue Caboose serves 115 families in Dallas and 15 in Ft Worth. Also 320 families globally participate in the birthday card program. The mission of Blue Caboose is to encourage community among cystic fibrosis families as well as easing the financial burden of living with CF. We are not in this fight alone and bringing awareness to the public has brought cystic fibrosis advancements further than ever thought imaginable.
Join me in expanding this new chapter and bringing exposure to our mission. If we join together as a community, we will never have to face a struggle alone, as we are all experiencing difficult climbs on a very similar journey. I hope to meet you soon at one of our caregiver/ parent dinners and hear your story.
Please register your family here www.bluecaboose4cf.org so we can keep you up to date with events happening in our area!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.