Join our team and help us get one step closer to a cure for cystic fibrosis!
We're excited to raise awareness for cystic fibrosis research. We've had it heavy on our hearts to expand the knowledge and awareness of this terrible disease that we recently discovered Kyle was diagnosed with. This genetic disease causes chloride to not be produced in the bronchial cells, which in turn builds mucus in the lungs, sinuses, and digestive tracts progressively over time. Thankfully, we praise the Lord that Kyle only has the Class V mutation of the condition, where he has some chloride production, but just insufficient amounts, causing an asymptomatic version of CF. With treatment he can live a long happy life with mild symptoms.
Fortunately, we discovered through genetic testing leading from having fertility issues as a couple. A blessing in disguise gave us the chance to diagnose and treat the underlying disease. Kyle has dealt with pancreatitis all his life (a symptom of CF), but was unaware of the other underlying symptoms. We've dealt with plenty of emotions in these last several months and it has been hard but we're praying and fighting through it. God has us in his hands. We're just thankful that we found it early and can monitor it as we grow together in marriage and our lives.
Others aren't as fortunate and fall victim to the disease as children or young adults. The average lifespan is mid to late 40s with hardship of infections, difficulty breathing, digesting, and ultimately dying. But with the help of continued research, doctors can develop medications, devices, and procedures to minimize and ultimately CURE this life long disease!
Please join us to run in this event and/or make a simple donation to help the great fight against cystic fibrosis! Together we can conquer!
Thank you and God bless you!
More info, see below;
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.